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Aug 09 2017 4:40 AM Post #203
Location : Netherlands, Opheusden

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Aug 09 2017 3:52 AM Post #202
Location : Australia, Blowhard

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Aug 09 2017 3:39 AM Post #201
Location : Canada, Brussels

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Aug 09 2017 3:26 AM Post #200
Location : Brazil, Timoteo

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Aug 09 2017 3:21 AM Post #199
Location : Great Britain, Routenburn

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Aug 09 2017 3:11 AM Post #198
Location : Denmark, Slagelse

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Charles H
Aug 07 2017 20:56 PM Post #196
Location : Base

Email from Dan Scorer, Mencap following his meeting with Sir Chris Mormald on the 26th July 2017.

Dear Charles,

As you know, last Thursday I met with the Permanent Secretary at Department of Health, along with the interim Director General for Community Care, and the Deputy Director for Learning Disability, Mental Health and Dementia.

Myself and Viv Cooper OBE, the Chief Executive of the Challenging Behaviour Foundation, had a useful discussion with the officials for an hour. We were not able to get answers to some of our key questions, but were able to press the officials and understand the steps that will be taken to get those answers:

Cross government strategy on learning disability
Sir Chris Wormald (Permanent Secretary) is bringing together senior officials from across government in September to follow up the recent Public Accounts Committee inquiry and report into support for people with a learning disability, and agree actions on cross departmental activity around housing, justice and employment amongst other areas.

The new DH Ministers will take a view on whether they want to develop a new cross governmental strategy. I pressed them on this, and it was agreed that regardless of what is decided, the department needs to set out a clear accessible communication for the public on cross governmental activity around learning disability.

National Learning Disability Board
The Board is ‘on hold’ as there is no current learning disability strategy for it to oversee. There will be a decision on whether the Board has any future following the meeting Chris Wormald has with other departments in September. I emphasised the importance of the decision on the strategy and the Board, and the clear message abolition of the Board would give in terms of deprioritising the interests of people with a learning disability and their families.

Replacing the Mental Health Act
DH will be setting up a review with independent chairs- after Christmas. It will not be until the Autumn that civil servants will be allocated to work on this.

Social Care Funding Green Paper
Consultation on this will begin in the Autumn. We discussed the importance of disabled adults being included in the debate around funding reforms, not just older people. This was agreed.

Supported Housing Funding changes
Chris Wormald is working closely with DCLG on this area and coming back to us on next steps.

Law Commission recommendations on DoLS
Recommendations and the government response are with Ministers for consideration

Viv and myself will be having a follow-up meeting with the Interim Director General who was very open to collaborative working, and I feel positive that this relationship will yield benefits on the above agendas. I hope this update is helpful Charles and look forward to your observations.

With best wishes,


Dan Scorer
Head of Policy & Public Affairs

My follow up on the 7th August 2017
On the 26th July 2017, representatives from Mencap and the Challenging Behaviour Foundation met Sir Chris Wormald, Permanent Secretary at Department of Health, and two other leading civil servants to discuss the future of services for people with learning disabilities. Dan Scorer from Mencap, kindly fed back to me a summary of the salient areas discussed.
I have selected the issue of serious concern to families that I could best seek significant enlargement upon and I append a copy of my email submitted to, and received by Department of Health, 7th August 2017.

For the attention of Sir Chris Wormald, Permanent Secretary at Department of Health,

Dear Sir Christopher,
On behalf of people with learning disabilities I have attempted unsuccessfully to draw the attention of Simon Stevens, Prof. Jane Cummings, Alister Burt, Bruce Calderwood, Steven Dalton, Martin Routledge, Jon Rouse, and numerous MPs, to serious shortcomings of ongoing policies that show little prospect of being resolved.
Dan Scorer (Mencap), kindly sent me a summary of the topics covered at his recent meeting with you regarding future policy direction for people with learning disabilities. I was concerned to learn of the uncertainty regarding the future of the National Learning Disability Board “as there is no current learning disability strategy for it to oversee”. The reality is that there has been “no current learning disability strategy” for almost 30 years
As a former practitioner and independent campaigner, I have attempted to alert successive governments and major charities to the immense waste of human and financial resources that has arisen since sound basic care in the community policies were set aside. Eminent humanitarian pioneers with immense hands-on experience introduced rational evolutionary policies in the late 1950s/60s that eventually enabled 50,000 inmates to be resettled successfully from large institutions into community settings.
Good progress was being made until local authorities came to exercise full control of policy direction and implementation in the mid-1980s. Although they had been delegated this authority since 1971, initially implementation was left to experienced practitioners under the guidance of experienced pioneers. By the late 1980s this guidance structure was supplanted by radical advice from sources committed to extreme but questionable ‘normalisation’ theories. This precipitated a spiral of decline in service support that has led to the turmoil that currently surrounds existing care in the community policies.
A series of reputable publications by major charities have charted the increasing trauma that tens of thousands of families have experienced during recent decades. Clearly, the complexity of the problem has not been fully recognised and finding a solution has been passed into the hands of middle management administrators, charities, academics, and private enterprise speculators who have neither the knowledge nor experience to address such a mammoth task. This provides little hope for a return to the equitable, stable, and comprehensive support service that was in the process of being achieved over 30 years ago. In fact, verifiable evidence confirms that the outlook for people with learning disabilities is considerably worse now than when I came into this area of work 50 years ago.
The most vulnerable members of our society need and deserve a service influenced and implemented by leaders sufficiently experienced and knowledgeable to fully recognise the complexity of the problems that these people and their carers face. Only then will movement proceed towards providing a continuum of opportunities that offers individual fulfilling lifestyles and builds bridges towards closer involvement in ordinary community life. This will never happen whilst the current fragmentation of policy leadership and policy direction remain subject to the whims of local authorities and Commissioners. This surely provides strong justification for a positive response to the plea for the formation of a single service agency with its own delegated Minister?
I hope you will consider that the issues I have raised warrant further serious consideration, and would be pleased to provide access to substantially more verifiable supportive evidence should it be helpful.
Yours sincerely
Charles Henley

Charles H
Aug 05 2017 19:13 PM Post #195
Location : Base

Thank you, Margene. There is more information on my Facebook site - Charles Henley. I try to keep that up-to-date but it makes many references to past events. I have also started blogging on WordPress, but that is very new. Best wishes, Charles
Charles H
Aug 05 2017 19:08 PM Post #194
Location : Base

Thank you, Jacqueline, best wishes, Charles
Aug 04 2017 17:40 PM Post #192
Location : Iceland, Hofn

Fantastic post but I was wanting to know if you could write a litte more on this topic? I'd be very thankful if you could elaborate a little bit more. Cheers!
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