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Charles Henley
Jan 09 2013 18:09 PM Post #21

I responded on this Facebook site , Unpaid Family Carers, and several other associated groups with the following message:

Re: a recent posting on a carers’ website concerning the role of a RADAR, a Disability Rights organisation in the closure of Remploy factories despite strong and emotional objections by the disabled people concerned.
Whilst is is true that RADAR became the Trojan Horse that did for Remploy it should not be forgotten that the real culprits were the six charitable organisations that supported the Remploy closures in 2007
On the 7th Feb 2008 I circulated a detailed analysis to these six charities the folly of basing the Remploy closures on a fundamentally flawed ‘inclusion’ policy. I accused them of betraying their membership and copied this to Liz Sayce at RADAR.
Jo Williams (CE Mencap) replied:
“Thank you for your letter of the 7th Feb 2008 and your thoughts around Remploy. I have duly noted your comments”. Liz Sayce replied with a detailed explanation why RADAR considered open employment for disabled people a better option.
Mencap then did absolutely nothing to prevent the disastrous and tragic outcomes for disabled people that subsequently followed; Liz Sayce produced her Report in 2011 that sealed the fate of Remploy.
Following the LDC ‘Tell it like it is’ Report’ early 2008, I warned Liz Sayce against accepting the judgement of major charities that had lost their way regarding total inclusion policies and were exercising influence totally disproportionate to the interests of their membership; I expressed concerns for more severely disadvantaged people and the need to provide a continuum of opportunities for all levels of abilities not taken into account in her proposals; I added a copy of my response to the LDC constructively critical of its continued dependence upon a fatally flawed ‘inclusion’ dogma; I did not receive a reply.
Clearly, when Liz Sayce carried out her review and produced her recommendations for Remploy closures she could not fail to have been aware of the dubious and fragile background upon which the total inclusion policy was based; nor of the fatal effects that this was having on the decimation of crucially needed specialist and structured services.
Consequently a disastrous policy continues unhindered through a failure to learn from historical mistakes and a failure to carry out adequate and appropriate research; yet another example of the power of ‘fringe’ people to influence policies that warm the hearts of local authorities and others with their own personal agendas. There is no obvious sign of change or hope for the future – we are getting past the point of no return.
Perhaps someone can tell me why carers are so indifferent to the outcome of this continuing flawed policy fiasco when it is also so blatantly obvious that it could also similarly be called to account to answer for the Winterbourne View scandal? Why do so few carers lack the will and motivation to try to change it by the most direct and obvious route?
Homebase
Jan 09 2013 10:22 AM Post #19

THE ENEMY WITHIN. 9th Jan 2013
I have recently posted on various carers’ websites a series of postings concerning the consequences of failed one-size-fits-all policies concerning residential and day care support vital if people with learning disabilities across a complex spectrum of needs are to be enabled to remain in the community and enjoy fulfilling lifestyles.
The appalling consequences of a quarter of a century of the corruption of the original Care in the Community philosophies has led to the destruction of the Remploy organisation at the top of the level of abilities and conversely the scandal of the Winterbourne View exposures relating to people with challenging behaviour.
It grieves me to have to make comments that reflect on carers as I am aware that it is the carers on these sites that really do care about current trends and try to do something about it - it is my admiration and respect for carers of this calibre that keeps me involved.
Years of bitter struggle and sacrifices that so many have made to create a purposeful support service - a continuum of residential and day care opportunities and choice – has been systematically destroyed by politicians, bureaucrats, academics, and petty local government officials who use your children as pawns in the game of self-promotion, career advancement, financial rewards, and gain a battery of superficial honours and titles as rewards for failure.
Perhaps, most seriously, it is the in-fighting within the charitable organisations in their pursuit of their own agendas and Government funding that has been the most serious betrayal of trust with the suppression of support for wide and informed debate in the public domain. These are ‘the enemies within’ that could seal the fate of service and financial support for sound and equitable services for the most vulnerable for generations yet to come – it may already be too late!
I am convinced that only when these issues are brought into the public domain will a national debate expose the injustices that have been inflicted upon carers and their families - and reveal the waste of billions of pounds in pursuit of false doctrinaires for all levels of ability but particularly the severely disabled. For many years I have collected evidence charting responsibility for the spiral of decline but time is running out. Much of this evidence collected will remain available but much it will be of limited value and will just remain minute pieces of a jigsaw puzzle when I am no longer available to link the pieces together. I am only too well aware as birthdays pass at an increasing speed, and my own fulltime caring responsibilities increase, my active contribution days are numbered. Hence my repeated effort to get a groundswell of support for petition that calls for such a debate; for this is one means by which many more carers and sympathisers can contribute with a little effort.
This petition is about seeking the right signpost to the future where financial and human resources will be used to the ultimate benefit of people with all levels of disability – and not poured down into a bottomless pit.
Could I again draw your attention to Government e-petition: http://epetitions.direct.gov.uk/petitions/36834
Homebase
Jan 07 2013 20:54 PM Post #18

salvorrd - all constructive postings are welcome.
Adrian Crew
Dec 08 2012 14:29 PM Post #15

Testing Bulletin Board
Charles
Nov 15 2012 7:51 AM Post #13
Location : Base

Message sent to Community Care 14th November 2012
After the blaze of attention and sentiment over the Paralympics what has changed in the outlook for the most vulnerable in our society?

In his first public statement September 18th, Norman Lamb, the new Minister for Care Support did a Baroness Warnock ‘U turn’ and identified the root cause of the Winterbourne View outcome. He exposed what has been the biggest confidence trick in social history - weeks have gone past but nobody seems to have noticed!

Yet the one-size-fits-all fantasies doctrinaire woven into the fabric of inclusion/modernisation doctrinaires so readily accepted by policy makers, psychologists, charitable organisations, journalists and eventually the Government will still remain a threat to the learning disabilities population unless the insidious introduction of these initially well intentioned but flawed dogmas are objectively debated in the public domain with open access to all concerned.

For the past quarter of a century fantasies have been sold and ACCEPTED AS FACTS – THIS IS CRIMINAL – BUT IT IS BEING BRUSHED ASIDE AND INJUSTICES PERPETUATED UNCHALLENGED..

What can Community Care do to revive hope that Care in the Community can be resuscitated and survive?

More to the point - WHAT CAN YOU DO TO CONTRIBUTE TO THE SURVIVAL OF CARE IN THE COMMUNITY?
Charles
Nov 01 2012 18:47 PM Post #12
Location : Homebase UK

Half a century after the introduction of Care in the Community and following the exposure of the Winterbourne View scandal 86 luminaries and organisations acknowledged in a letter to the PM that this outrage was an “almost unavoidable consequence of the continuing use of inappropriate services to support some people with learning disabilities".
In his first statement as new Care and Support Minister Norman decreed: "People deserve a high quality care service that meets their needs. Everyone's needs are different. We can't have a one-size fits all approach. This new programme will increase choice in the care services provided to them.”
And so at last we have admissions that the one-size fits all approach imposed on innocent and deserving families for the past quarter of a century have led only to the inadequacy of service that made has Winterbourne View inevitably only a depressing signpost of what is yet to come.
Will it change under the new Care and Support Minister – not a chance? The current debacle was orchestrated by Local Authorities who never were and never will be the right people to handle this most complex of tasks. That this new programme has been devised with the collaboration of the Association of Directors of Adult Social Services can only raise fears that this already the kiss of death for a positive and viable outcome.
What could relatives do? Very little, as by stealth parental rights are being stripped away so that under the smokescreen of individual rights and freedom of choice officialdom gains complete control of young minds and bodies. This equally applies to ordinary families who find sex education being imposed on children hardly out of nappies, and condoms and abortion pills being dished out without parental consent to girls who should still be playing with dolls.
Can we get rid of LA control? We should at least try. To this end in August I posted a Government epetition;
http://epetitions.direct.gov.uk/petitions/36834
"Establish a new agency specifically to identify and implement policies appropriate to meet needs of adults with all levels of learning disability"
Such a debate would bring out of the shadows many influential people who share your view but, like so many carers, are intimidated into silence less their careers are prejudiced by the influential cliques that currently hold power and sway
Although this was circulated widely to carers groups expressing serious concern for the wellbeing of people with learning disabilities (including this forum) only 70 signature have appeared so far – most of them personal friends.
A great deal more fire is needed if a revolution is to begin.
By the way, how many forum followers have logged into Rosa Monckton’s website and given her the support she needs and deserves in view of the great efforts she is making to draw attention to your plight?
I am posting this on my own website and will add to it in the fullness of time.
http://www.learningdisabilitiesproblems.co.uk/
Best wishes
Charles Henley
Charles Henley
Oct 04 2012 4:30 AM Post #11
Location : Home Base UK

MESSAGE TO MENCAP 4th October 2012-10-04

Dear Mr Scorer,
Can I hope that Mencap will draw the attention of all of its members to this courageous effort of Peter Oakes to bring sanity back to policies in the best interests of people with learning disabilities and their carers?
Crash What went wrong at Winterbourne View ... - University of Hull
This powerful article by Dr Peter Oakes, Hull University, September Issue, Journal of Intellectual Disabilities. provides a touching and, accurate picture of the consequences of the current policy debacle as seen through the eyes of the innocent victims. It supports almost totally the issues I keep sounding off about and is the central purpose of my e-petition.
Policy direction and implementation has been in the hands of powerful people for the past quarter of a century - the wrong people – Winterbourne View was the predictable outcome – but nobody listened.
Control and influence of services has got to change – current Government advisors have failed -there has got to be one voice, one purpose, and fragmentation of support must stop.
Government e-petition http://epetitions.direct.gov.uk/petitions/36834 is only one way, maybe the last resort, it is struggling but do not waste it – spread the word.
Best wishes
Charles Henley .

Homebase
Sep 30 2012 8:58 AM Post #10
Location : Bournemouth UK

30th September 2012
Department of Health statement by Care and Support Minister Norman Lamb. 18th September, 2012.
‘People deserve a high quality care service that meets their needs. Everyone’s need are different. We can’t have a one size fits all approach. This new programme will increase choice in the care services provided to them. We want to improve the care services already in place by giving local authorities the skills to work together with their care providers and anticipate priorities, pressures and challenges in order to tailor care for their communities.’
This is not only downright hypocrisy but a continuation of the despicable brainwashing of carers and the public at large that has taken place over the past quarter of a century.
That this new programme has been devised with the collaboration of the Association of Directors of Adult Social Services says it all – for nobody is more culpable for the verifiable appalling and dramatic decline in services for the severely learning disabled than the ADASS – except perhaps the major charitable organisations such as Mencap who have condoned and encouraged the existing one size fits all approach.
The response to a FOI request by a concerned parent for numbers of people with learning disabilities assessed as eligible for Adult Care Services who had been referred for psychological assessment for each year of the last five years details the alarming increase in people with learning disabilities seeking psychological assessment in just one London Borough.
The numbers obtained showed a huge rise in referrals. The date 2006 was significant as it was the year the LA closed down a very popular day centre. The referrals rose from 9 clients in 2006 to 32 clients in 2007 and a whopping 75 clients in 2008. Years 2009 to 2011 was 35, 71, and 45 respectively.
The prospect that this outcome is nationwide can only signpost an increase in family breakdowns and the dreaded return to Winterbourne View type institutionalisation.

Homebase
Sep 30 2012 8:47 AM Post #9
Location : Bournemouth UK


30th September 2012
Crash What went wrong at Winterbourne View ... - University of Hull
This powerful article by Dr Peter Oakes, Hull University, provides a touching and, accurate picture of the consequences of the current policy debacle as seen through the eyes of the innocent victims. It supports almost totally the issues I keep sounding off about and is the central purpose of my e-petition.
Policy direction and implementation has been in the hands of powerful people for the past quarter of a century - the wrong people – Winterbourne View was the predictable outcome – but nobody listened.
Control and influence of services has got to change – current Government advisors have failed miserably – there has initially got to be one voice, one purpose, and fragmentation of support must stop.
Policy determination and implement must be in the hands of professionals, practitioners, and determined carers who have one purpose – to meet the individual needs of people of all levels of ability and their carers.
Government e-petition http://epetitions.direct.gov.uk/petitions/36834 is only one way, maybe the last resort, it is struggling but do not waste it – spread the word.
Best wishes
Charles www.learningdisabilitiesproblems.co.uk.


In the meantime, please also add your support to Rosa Monckton’s epetition http://epetitions.direct.gov.uk/petitions/31475
Charles Henley
Sep 01 2012 10:02 AM Post #7
Location : Home base UK

Paralympics Spin off

The outstanding success of the Paralympics has generated the possibility of a widespread and long overdue change of public attitudes towards people with disabilities.

Crucially, will it also dramatically change the attitudes and insight of the major charitable organisations, the people who currently influence and implement service provision, and the media who half-heartedly float around insular aspects but fail to address the core issues of a fundamentally flawed policy?

People with learning disabilities have all, regardless of levels or complexity of handicap, been facing their own lifetime of ‘going for gold’ assisted too frequently only by the dedication of long suffering parents and carers.

But they have not been told that they are valued people – only that they will become valued people if they can be absorbed into the community and enabled to work and play and learn the values of ordinary people. They have been constantly reminded that that they are inferior and that by associating together they will compound their inferiority. When people with learning disabilities get together they are ‘segregated’ and ‘stigmatization’ follows – or so current policy doctrinaires decree

Inclusion and integration for all are desirable objectives but the Paralympics can only confirm that ordinary people have much to learn from these people and that being ‘segregated’ from the main Olympics has enhanced the quality of their efforts as ‘valued’ people as never before.

Can recognition of the challenges facing these contestants and their responses explode the mythology and false premises that have bedevilled policies concerning provision of support vitally needed to enable the disabled to lead rewarding and fulfilling lives? Can we hope that the success of the Paralympics will filter through; have long lasting benefits; and initiate a return to sanity by restoring appropriate support policies for disabled people and their carers?

All disabled people must be recognised as valued people in their own right. We can learn much from them – not them from us.

For the past quarter of a century policies have been devised and implemented by the wrong people. Could I draw your attention to a new Government e-petition:
http://epetitions.direct.gov.uk/petitions/36834
"Establish a new agency specifically to identify and implement policies appropriate to meet needs of adults with all levels of learning disability"
Responsible department: Department of Health
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